Keenan Cahill aka BeenerKeeKee19952 is that kid on YouTube that lip syncs to all the popular songs. (Why didn’t I think of that?!) His most popular videos, Katie Perry’s “Teenage Dream” (30m+ views) and 50 Cent’s “Down on Me” (22m+ views) are on my favorite list. He is uninhibited, his love for music and gag is obvious, and frankly, I just love him.
But now, BeenerKeeKee19952 is one of my favorite people in the world for another reason: he is a fighter. WGN 9 Chicago featured Keenan and his unique health condition known as Maroteaux-Lamy syndrome or mucopolysaccharidosis type VI (MPS VI) – a genetic disorder that affects 1 in every 500k individuals and has no cure. His drug treatment is one of the most expensive at $350,000 a year. He’s undergone knee, brain stem surgery, lip, hand, and is scheduled for more.
All I can hope is that his YouTube videos generate enough income for him to be able to at least partially pay for his medication if he is not fully covered.
I can only imagine what it’s like to have to live a life like Keenan, and I thank my lucky stars for being healthy. For all those hateful people who make fun of his looks and post offensive comments… I just feel sorry that despite you being healthy, you have very little soul and heart – or talent for that matter.
Check out WGN’s story below and Keenan’s videos. Go head Keenan! Get down! Can you do a “Amor Prohibido” by Selena? Thanks!